Three personnel who exceeded cancer in their childhood or youth of region how vivierón are already registered.
Listening to childhood and youth cancer survivors is key to the European E-Cuol Projectthat seeks to improve your quality of life through digital tools. In the E-Quol workshops in Spain and Norway, Anne-Sophie Gresle and Kristen Thornton invited the participants to their experience. Yaiza, Saskia and Samuel accepted the challenge and here report some of their most intimate experiences.
Yaiza Cumelles, Patient defender: «Invisible son sequelae»
Soy yaiza and when fulfilling 21 years I diagnosis of LymphomaA Cancer from Sanzre.
At the moment my mind was stunned, full of He wonders… Why me? What he caused yourself? How can I have cancer if I’m Jouve? Although I never had an answer, I faced the treatment with optimism and eager to cure myself to return to «normal life.»
I spent a lot of time The hospital. He frequently entered. That is moment he sent me as a WeirdoAs if I wasn’t my place. He was always the youngest. My compounds of habiting were of my grandmother’s age and, it was of the although the spoiled of the plant, the moments in which she sent me to the queen of the some of the some of the ina of the fuck. The coolness was complicated, I had to do several treatment lines over the years to have something Marrow transplant That managed to send the disease.
I had that abandoned my studies, my work and the relationship They moved away Forever. I saw how my surroundings advanced with his life: they had a partner, children, new jobs, traveled, partying … and all that I did was be sick in the hospital.
Throughout the process I missed a space where I could talk or inform me about what the clinical diagnosis was not. As sexualityhe jobMy concerns about the futureWhat could I do to improve my Quality of life. All of the information I found on the Internet was made by and for doctors. Do we not have the right to have the right to have that?
Therefore, when cancer referred, I saw that not only had nothing in common with my friends, breast that had not vivid anything of the girl in her 20. He had barely had experiences outside the hospital and sends me Very alone Throughout the process. I missed information on all the issues that were not The desperate: The difficulty of incoming workTHE Social anxietyhe Physical change and the aftermath.
My day to day after overcoming an aggressive lymphoma is pleased. It seems to me that a countercurrent, the secules invisible son and I feel the constant pressure to have to live as if nothing had happened.
Although cancer has taken part of my life and dedicates me to survive more than to live, in these years I have been able to see the technology Has permission connects between patients To wrap us, Access fialist information and understandable and be able to carry a Mayor control of our health. The cancer cure may not yet be found yet, but I am happy to see how the following generations will be increasingly empowered.
Saskia Degen: «The ‘Despose of Cancer’ Import»
Saskia soy and diagnosis Neuroblastoma A loss 2 years.
For me, there is no life before and after cancer, there is only the one of flaws. For more than 20 years I thought that this cancer could not have had any impact on my life because I know Too small to remember Nothing.
But now, looking back, I see many physical problem, Look AND Anxity That, in reality, they caused them cancer and still affect my real life.
For years I tried set aside all negative feelings. He told myself: «I have to be grateful,» «I have no right to feel this, hay people in peúres situations,» etc.
Desperate BOTTOM Emotional, now I know that cancer leaves A footprint in life Of any person, because the «arrival of cancer» imputation and nothing is again like. At this point in my life, I would have felt grateful to have an application that would show me that late effects You can have cancer and how I could get in touch with other child and youth cancer survivors.
Each survivor deserves to get the most out of life after cancer, and technology can make this possible facilitating the Access to informationTHE aid And the Connection between survivors.
Samuel Degen: «The diagnosis made me furious»
Soy samuel and I diagnose a Hodgkins lymphoma A loss 19 years.
Looking back, at the moment it would not have been price that someone had taken the time of Listen to me and explain to me He Psychological impact Of cancer, or be able to have some of type of resource for real element, whether it was an application, a platform to connect with other survivors or any other source of information.
Instead, the diagnosis of put furious. I was at the University studying business and all I wanted was to party, finish the race quickly and earn a lot of money.
Instead, I was forced to something one operation Already months of chemio AND radiotherapy. I found badly, I lost my memory a cortomatúa term and all my physical energy.
The truth is that I also had a lot fear And it was Slot. But he does not admit, neither before Mimo himself nor before Nade. Nor Nieie asked me for it. So I decided to get angry, ignore and consume cocaine until you stop feeling myied or frustrated.
This lasts a couple of months, until I reached a single Turning point And I couldn’t keep denying myself. At first I tried to commit suicide. There are no functions, lucky. So I had to face my reality. I could no longer continue at the university because my memory was shattered. In addition, I realized that studying business and surrounding myself with rich and egocentric people without it was at all in what I wanted to perceive my time.
In the end, I ended up working on an advertising agency in which I had done practices before.
Even so, I spent another 10 years in the depressionTHE denial and the Substance abuseUntil I finally received treatment for missing problems Mental health. A regret of everything, the achievement builds a very interesting career in the world of advertising.
Soybean hole Partner director of an agencyHe took 9 years Fullamato sober And, most importantly, I’m married With Saskia and Soy chaplain of a wonderful child.
So, however fucked that things seem, my mayor lesson is this: HEO HELP And no one should be afraid or too pride to ask for it. There are many good things waiting. Or at least, I think so.
