El impacto de los cuidados informales. Calidad de vida de los cuidadores informales de supervivientes de ictus

Nowadays, the demand for care continues to increase, while the availability of informal caresses is increasingly reduced. Although informal caresses are fundamental, public polyics rarely take them into account. Consistent to promote attention in home and community environments, written container better the factors that determine the burden and quality of life related to informal care. This will allow intriguing specific apparels that respond to theadiers of caregivers, thus supporting their well -being and ensuring the sustainability of the care system.

Ittus is one of the main causes of disability and death in the world. Its repentine appearance requires informal caregivers to assume responsibilities for those who are not always prepared (Oliva-Moreno et al, 2018). Although taking care can be a rewarding experience (Mackenzie et al, 2011), Can also negatively affect your health, your well -being and your quality of life (Kokorelias et al, 2020), Generating the well -known Caregiver load (Carretero et al, 2009).

Beyond the ITTUS SANITARY SANITARY COST (Ribera et al, 2022), The load of informal caresLópez-Bastida et al, 2012; Van Exel et al, 2008). In addition, there has been little athen for the quality of life of informal caregivers (Moura et al, 2022) and its inclusion in economic evaluations remains limited (Hoefman et al, 2013; Krol et al, 2015).

With the growing need for informal cares and the intention of health and social attitude (Vela et al, 2022), All factors influences the well -being of informal caregivers is key to interventions to desolate care focused on the person, sustainable, and integrated.

The objectives of this study were to describe the intensity of the care and its consequence in the informal caregiver, according to the degree of dependence of the people who were aimed at a beginning. We also seek to identify the factors that are associated with the quality of life related to the care and well -being of informal care.

For this we rely on a cross-sectional study in the context of a parallel cost-utility analysis to the Racecat clinical trial (Pérez de la Ossa et al, 2022). We include patients who survived 6 months after a severe ITTUS, identified by the RACE (Rapid arterial occlusion evaluation) Mayor 4, and their informal caregivers, defined as relatives or nearby characters that offered care or remuneration.

To respond to our objectives, we elaborate a conceptual framework framework developed from previous investigations and the experience of the investigating UPUGO, which allows us to identify the three main groups of factors: 1) patient characteristics; 2) characteristic of the caregiver; 3) Intensity and type of care provided. The director hypothesis that we left is that these factors can affect the charge of care, and this load direct influence on the welfare of the caregiver. In addition, we also assume that these factors could impact directly or indirectly on well -being (Figure 1).

A starting of structuring equations we could identify how these three groups of factors (characteristics of the patient, caregiver and care) influence the perceived load of the caregiver measured with the instrument instrument Quality of life related to care (Carerqol-7d) In 7 dimensions, five of these dimensions are related to problems: relational, mental health, physical health, financially combining daily activities. The remaining two dimensions reflect positive aspects: the feeling of realization and the support received from others. Each dimension is evaluated in three response nveles: «nothing», «a little» or «a lot.» And, in turn, we measure the well -being of the caregiver with an analog visual scale of the Carerqol instrument.

Figure 1. Conceptual framework of the components and determinants of the quality of life related to care. Ci = informal caregiver; RC = care receiver.

Our analysis showed that most of the caregivers were women (74%) with an average age of 59 years, and most cared for their partners. The attitude provided by caregivers was constant, 7 days a week. The hours dedicated to the weekly Atance varied, with a median of 21 hours for the dependence of the dependence 40 hours for the total dependence or tomb.

The following graph teacher a clear trend, caregivers stimulate more problems as the person’s dependence that receives the cares. However, a regret of these challenges, most caregivers claimed to be satisfied with their caregiver role, independent of the level of dependence dependence.

Figure 2. In this graph we show the 7 dimensions of the Carerqol-7D instrument, depending on the level of dependence (measured with the Barthel index, categorized at the level of severe dependence (<35), Moderada (40-55) y leve (> 60). The vertical axis, we see the percentage of caregivers that will inform body problem in body (a lot, a little, no).

Likewise, the results of the significant significant sample results in their being a woman, dedicate more hours to care, and the need for constant supervision of the patient with a mayor perceived by the caregiver. In addition, mayor anxity of the patient are related to less well -being in caregivers.

Key findings, implications and policy recommendations

The relationship between the caregiver and receptor of care can have a reciprocal impact on both. As we have seen, mayor dependental of the careful person, mayor load and worse quality of life of the caregiver; But it is important to keep in mind that the caregiver’s task can often be key to the recovery of perpetone.

In the context of a population aging and the increase in health and socialness, informal caregivers Essential Unchanting. Their care not only improves the quality of life and those resulting in health of those who care, but also contribute to the sustainability of health and social systems, influencing the prevention of avoidable (avoidable (((((((((Amjad et al.2020). However, they continue to represent an invisible workforce.

In respect of our hallazgos and the previous existing evidence, we consider fundamental:

• Take care to those who care and train in the provision of care: The results of our study underline the urgent need to have solid psychosocial support cycles. I special for women with a high charge of care or care of people with high levels of anxiety or depression.
• Incorporate integrated care technologies and models: Treatments and interventions, such as digital technology and technologies called Environmental Assisted Life (AAL) (Jaschinski et al.2021) They can have a great impact on the quality of life related to care. Essential that these are part of the evaluation of integrated attenition models, so its medicine should be incorporated into the evaluations special economic evaluation, and in mayor, degree of the care process (Wittenberg et al.2019).
• Impact on costs with care: ENU in parallel to this we have estimated that the costs of community and relational costs with the representative care of 40% of the total costs of ITTUS during the first year, and it must oo counts that in successive years successive event only Ooooooo of Aurmar canSoler-Font et al.2024).
• Measure (des) care profits: Develop methodologies that allow measuring care profits, for example, through tools such as the instrument of quality of life related to care (carerqol) and incorporating into wages economic evaluations (Wittenberg et al.2013).

A through this contributes to the AES blog, we invite academics, professionals and policy developers to unite efforts to ensure that caregivers receive the support they need.